This is a photo of Doc and Kevin taken at Chautauqua Gorge in April 2000. I have always loved this photo because it is Kevin at his best and you can see the love these two had for each other. Doc was so proud carrying his own backpack, too.
I do have to say something though, hoping that whomever reads this takes note and thinks before they say or do this. It isn't fair and is very sad when it happens. It has happened to my dad and now to Kevin, too.
A friend of ours wife came to see Kevin a week ago or so and made the comment that she was upset with her husband because he didn't tell her how bad Kevin was. Okay, that's understandable. But, what she said next is not. She said she wished she hadn't seen him because she wanted to remember him when he was well.
Excuse me! Your memory suddenly goes defunct all of a sudden because you see someone ill? What this women in essence really is saying is that it hurts HER too much to see Kevin sick. I don't really care about HER feelings. By staying away from friends that are sick because YOU don't want to feel bad has got to be the most selfish, self serving thing I have ever heard or seen. Isn't part of being a friend to be there even during the tough times? I have heard the phrase :"fair weather friends" and it seems that many of Kevin's friends, and mine too, were or are that.
Well people, the storms are raging so go home and cocoon in your little bubble of comfort. We, on the other hand are facing the thunder and lightning and yes...raging back!
Saturday, July 31, 2010
Thursday, July 29, 2010
One day at a time I guess
Well, Kevin and I finally have some help! His doctor made arrangements for Hospice to come in and help us. It was very sad and hard to accept this. In fact, on Monday when the woman was supposed to come, I cancelled it because I felt sick to my stomach. I realize now that I was simply trying to postpone having to deal with it. I usually deal with things head on, but this time I just couldn't. Lynn Austin was the initial contact and she was very kind and understanding of what I did and the heartbreak I felt. She told me it was not unusual to do this. Naturally, me being myself, I felt guilty about it but she comforted me and let me know I was not alone in my reaction.
I think watching someone you love in pain has to be the hardest thing a person has to do. My Dad is also going though major life changes and now has had to accept that he is going to lose his other leg. I am very proud of my Mom and how she is handling this. And my Dad, too. I can't imagine coping with that but you do what you have to do to stay alive. Life will be different, but there will still be life!
Kevin and I have often discussed quality of life issues. He, for one, would not be able to make the decisions that my father has had to. I know that Kevin would choose death over amputation and that is each person's individual choice. Myself...I'm pretty sure I would fight to live like my dad is. Plus, he'll have a cool motorized chair to buzz around the neighborhood in! I know that my father will make the absolute best of what he has been dealt and so will my mom.
People have often said that I am a strong person. Well, who do you think I got it from? My mother and father.
I am still having difficulties with our decision. Hospice made arrangements for some items that will help Kevin and to be honest, I did not react well to them yesterday. For one thing, they showed up without calling and luckily Sandy was here while I was at work. I know they are things that we will need down the road but it pissed me off. But, as I tell myself-this isn't about me is it? So shut up and buck up.
Oh yes, I smack myself around on a regular basis. I guess I figure it's better I do it than wait for someone else to. Brilliant theory, I know.
I think watching someone you love in pain has to be the hardest thing a person has to do. My Dad is also going though major life changes and now has had to accept that he is going to lose his other leg. I am very proud of my Mom and how she is handling this. And my Dad, too. I can't imagine coping with that but you do what you have to do to stay alive. Life will be different, but there will still be life!
Kevin and I have often discussed quality of life issues. He, for one, would not be able to make the decisions that my father has had to. I know that Kevin would choose death over amputation and that is each person's individual choice. Myself...I'm pretty sure I would fight to live like my dad is. Plus, he'll have a cool motorized chair to buzz around the neighborhood in! I know that my father will make the absolute best of what he has been dealt and so will my mom.
People have often said that I am a strong person. Well, who do you think I got it from? My mother and father.
I am still having difficulties with our decision. Hospice made arrangements for some items that will help Kevin and to be honest, I did not react well to them yesterday. For one thing, they showed up without calling and luckily Sandy was here while I was at work. I know they are things that we will need down the road but it pissed me off. But, as I tell myself-this isn't about me is it? So shut up and buck up.
Oh yes, I smack myself around on a regular basis. I guess I figure it's better I do it than wait for someone else to. Brilliant theory, I know.
Monday, July 26, 2010
Sorry
I am very sorry that I haven't kept up with this. I had all good intentions for this blog. I wanted to keep Chalan aware of what was happening in our woods and also for friends and family if they were interested. But, life being itself....
Kevin spent some time in the hospital and at Heritage for PT. He seemed to be getting better, so after 20 days (the magic number when Medicare won't pay 100%) he was released. It has been a battle day to day ever since.
I started a new job recently and my boss Tim is very understanding and supportive of our situation. His wife, Sarah, is a nurse so she also understands and empathizes.
It's very hard and very sad. Some days I am just a hollow shell and wonder how long I can keep trying. Good thing I'm stubborn I guess!
I try to tell myself tomorrow is a new day with new opportunities. Not every day is sad, and there are good days when the hope is still alive and vibrant. I cherish those days and if willing it can make it happen, there will be many more!
Keep in touch and so will I.
Terry
Kevin spent some time in the hospital and at Heritage for PT. He seemed to be getting better, so after 20 days (the magic number when Medicare won't pay 100%) he was released. It has been a battle day to day ever since.
I started a new job recently and my boss Tim is very understanding and supportive of our situation. His wife, Sarah, is a nurse so she also understands and empathizes.
It's very hard and very sad. Some days I am just a hollow shell and wonder how long I can keep trying. Good thing I'm stubborn I guess!
I try to tell myself tomorrow is a new day with new opportunities. Not every day is sad, and there are good days when the hope is still alive and vibrant. I cherish those days and if willing it can make it happen, there will be many more!
Keep in touch and so will I.
Terry
Tuesday, February 2, 2010
I am back!
I haven't had the time or to be more truthful, made the time to post on the blog.
Life hasn't been very pleasurable lately. I did manage to finish the Italian class I started in September and actually got an A. Weird, I know. It was a very difficult class because Italian is very much like Latin with all those verbs to conjugate! I did it though and fulfilled the language requirement for my Bachelor's. I did ask for an extension on the Art Therapy class simply because with all that has gone on I knew I would not be able to finish it.
Kevin was in the hospital and my dad has been very ill. My dad had to have his leg amputated due to poor circulation. It's been really hard on him and my Mom. My family has pulled together through all of this so I know we'll all end up fine!
I'm okay-going through the breast reconstruction which naturally, did not go as planned. The things we do for vanity!
Have to go but wanted to post something for the few friends I have. Take care.
Life hasn't been very pleasurable lately. I did manage to finish the Italian class I started in September and actually got an A. Weird, I know. It was a very difficult class because Italian is very much like Latin with all those verbs to conjugate! I did it though and fulfilled the language requirement for my Bachelor's. I did ask for an extension on the Art Therapy class simply because with all that has gone on I knew I would not be able to finish it.
Kevin was in the hospital and my dad has been very ill. My dad had to have his leg amputated due to poor circulation. It's been really hard on him and my Mom. My family has pulled together through all of this so I know we'll all end up fine!
I'm okay-going through the breast reconstruction which naturally, did not go as planned. The things we do for vanity!
Have to go but wanted to post something for the few friends I have. Take care.
Saturday, October 10, 2009
Short Story-Stella Pt. 3
My family and their friends played along with me in their adult wisdom. I was teased about her and asked all kinds of questions. “I’ll bet she looks just like you doesn’t she Jessie?” my mom would say. “No!” I would cry in frustration, “I’m me, not her! Her hairs are red and she’s big.” I was a very small child for my age with golden brown hair, nothing like her at all.
I tried to ignore her but she was strong.
I’m sure it was considered quite cute and sweet by the adults in my family to set an extra place at the dinner table for my friend. How come I couldn’t see her, could they? But how was it possible to feel something that you couldn’t see? It confused me.
I didn’t want her beside me, I made them put her next to my father. Maybe he could control her because I sure couldn’t. Naturally, she did as she pleased anyway, and I would get blamed for the beets on the floor or the finger prints in the cake icing. No one ever saw her when she was bad, not even me.
But I paid for it every time and I knew she was there.
My grandmother stopped over for a visit one day and found my mother in tears. I was, at the time, standing in the corner because I had been a “very, very bad girl”. My mom had seen a nasty, mean drawing in my book of a kitty with blood all over it and had caught me breaking all of my crayons. I was crying because I had snapped all of my crayons on purpose and it broke my heart to do it. I was crying because I didn’t do that drawing or any of the rest of those nasty ones in my book! She had!
I was crying because my mom was mad at me and I had made her cry again.
When I tried to explain that day, my mom yanked me to the corner and said “You stay right there until I tell you that you can move you bad girl! Don’t lie to me! You did this and I will not put up with this kind of behavior!” I was scared. I couldn’t make her go away and she was getting stronger.
“Maybe this invisible friend thing has gone too far, Jill.” my grandmother said that day to my mother. “Jessie is such a good girl. I don’t understand this willfulness and temper all of a sudden. It just isn’t like her.” My heart soared! My grandmother knew! She knew it wasn’t me!
“She’s just being a mean, nasty brat!” my mother cried angrily, “She’s not your daughter to coddle, and she needs to stop this! Don’t you go making excuses for her again!”
My shoulders sagged. Even Gramma couldn’t help me now. I was alone with her.
The years passed, my brother arrived and family focus was on the new baby. He was cute, happy and always had a smile for everyone. I loved him with all my heart but I would not stay alone in any room with him. My parents consulted Dr. Spock who said that jealousy of a new sibling was perfectly normal and that the older child would come to terms with it on their own if given time.
I wasn’t jealous of the baby, I was protecting him from her. She didn’t like him being there. I knew… I knew she wanted him gone! She wanted to hurt him and make him cry! I had found the drawings in my sketch book that told me how she felt about him. I shuddered as I remembered what she had done to that cute little face. He was safe though, because I had figured it out.
You see, as the years had passed, I had come to realize that the horrible drawings that appeared on the table in my room during the night weren’t what had happened, but what she wanted to happen, what she wanted to do. I had also discovered quite by accident, that if I erased some of what she had drawn or changed it, things didn’t happen at all. I had to check though, every day to make sure I didn’t miss one.
Sometimes I did.
One time she put my cat in the dryer and just as I opened the door to get him out, my dad caught me and smacked me hard on the butt. “I thought you loved Frisky!” my dad yelled at me. “Don’t you know you could kill him doing this? What is wrong with you sometimes?” I found the drawing of a cat strangled by my blue and green striped knee-sock under my bed later that afternoon.
So I learned to be vigilant. I learned to be quiet, to listen for her, to feel her coming. Already a contemplative child, I became more so. I locked myself in my room when I felt her coming and fought her as best I could. I found that reading kept her occupied and kept me out of trouble, so we read. We read constantly, because she was always so hungry.
When reading began to bore her, I made up stories and wrote them down in the set of bound blank journals my grandmother had given me. “Perhaps if you write down your bad dreams and do some drawings of what you remember from them,” she had said, “maybe they will go away.” They didn’t go away, but I did figure out a way to keep some sense of control. She would read the stories I came up with, draw wonderful images to go along with them if she was feeling kind and if she liked them.
When she didn’t, well, that was another matter.
My sketch pads and journals are numerous and kept hidden away from prying eyes. I rarely share “my” drawings with anyone. I don’t think I would be able to explain or even be believed if I tried to say why some of the drawings are signed like they are. In what looks remarkably like blood, they are signed simply
I tried to ignore her but she was strong.
I’m sure it was considered quite cute and sweet by the adults in my family to set an extra place at the dinner table for my friend. How come I couldn’t see her, could they? But how was it possible to feel something that you couldn’t see? It confused me.
I didn’t want her beside me, I made them put her next to my father. Maybe he could control her because I sure couldn’t. Naturally, she did as she pleased anyway, and I would get blamed for the beets on the floor or the finger prints in the cake icing. No one ever saw her when she was bad, not even me.
But I paid for it every time and I knew she was there.
My grandmother stopped over for a visit one day and found my mother in tears. I was, at the time, standing in the corner because I had been a “very, very bad girl”. My mom had seen a nasty, mean drawing in my book of a kitty with blood all over it and had caught me breaking all of my crayons. I was crying because I had snapped all of my crayons on purpose and it broke my heart to do it. I was crying because I didn’t do that drawing or any of the rest of those nasty ones in my book! She had!
I was crying because my mom was mad at me and I had made her cry again.
When I tried to explain that day, my mom yanked me to the corner and said “You stay right there until I tell you that you can move you bad girl! Don’t lie to me! You did this and I will not put up with this kind of behavior!” I was scared. I couldn’t make her go away and she was getting stronger.
“Maybe this invisible friend thing has gone too far, Jill.” my grandmother said that day to my mother. “Jessie is such a good girl. I don’t understand this willfulness and temper all of a sudden. It just isn’t like her.” My heart soared! My grandmother knew! She knew it wasn’t me!
“She’s just being a mean, nasty brat!” my mother cried angrily, “She’s not your daughter to coddle, and she needs to stop this! Don’t you go making excuses for her again!”
My shoulders sagged. Even Gramma couldn’t help me now. I was alone with her.
The years passed, my brother arrived and family focus was on the new baby. He was cute, happy and always had a smile for everyone. I loved him with all my heart but I would not stay alone in any room with him. My parents consulted Dr. Spock who said that jealousy of a new sibling was perfectly normal and that the older child would come to terms with it on their own if given time.
I wasn’t jealous of the baby, I was protecting him from her. She didn’t like him being there. I knew… I knew she wanted him gone! She wanted to hurt him and make him cry! I had found the drawings in my sketch book that told me how she felt about him. I shuddered as I remembered what she had done to that cute little face. He was safe though, because I had figured it out.
You see, as the years had passed, I had come to realize that the horrible drawings that appeared on the table in my room during the night weren’t what had happened, but what she wanted to happen, what she wanted to do. I had also discovered quite by accident, that if I erased some of what she had drawn or changed it, things didn’t happen at all. I had to check though, every day to make sure I didn’t miss one.
Sometimes I did.
One time she put my cat in the dryer and just as I opened the door to get him out, my dad caught me and smacked me hard on the butt. “I thought you loved Frisky!” my dad yelled at me. “Don’t you know you could kill him doing this? What is wrong with you sometimes?” I found the drawing of a cat strangled by my blue and green striped knee-sock under my bed later that afternoon.
So I learned to be vigilant. I learned to be quiet, to listen for her, to feel her coming. Already a contemplative child, I became more so. I locked myself in my room when I felt her coming and fought her as best I could. I found that reading kept her occupied and kept me out of trouble, so we read. We read constantly, because she was always so hungry.
When reading began to bore her, I made up stories and wrote them down in the set of bound blank journals my grandmother had given me. “Perhaps if you write down your bad dreams and do some drawings of what you remember from them,” she had said, “maybe they will go away.” They didn’t go away, but I did figure out a way to keep some sense of control. She would read the stories I came up with, draw wonderful images to go along with them if she was feeling kind and if she liked them.
When she didn’t, well, that was another matter.
My sketch pads and journals are numerous and kept hidden away from prying eyes. I rarely share “my” drawings with anyone. I don’t think I would be able to explain or even be believed if I tried to say why some of the drawings are signed like they are. In what looks remarkably like blood, they are signed simply
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